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Old 06-20-2010, 08:38 PM
Eskimo Eskimo is offline
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Join Date: May 2010
Posts: 19
Default Hello to the forum

I just thought I'd properly introduce myself as I have been reading the forum for awhile. I have a bit of a unique perspective as I am both a physician and now an ADR patient. I am not entirely sure my background in medicine has been a help or a hindrance. It's been a hindrance in that I sometimes have a hard time being the patient and a help in that I am able to access services much more quickly than the general public (although you Americans will probably find the process I went through slow).

My problems began back in 1990 when I was 18 and putting down a very light weight when suddenly I got the worst pain of my life in the lower back. I couldn't hardly walk or sit and embarassingly had my mom call an ambulance to take me to emergency. After a shot of something and some T3's I went home that night and it gradually settled. However, over the next 3 years it would occasionally return for a few days when one day when I was 22 I was out chopping wood for a few hours and a dull ache came on. Little did I realize at the time that it would never go away. From about 1995-2008 I had really bad pain most days but still good range of motion and function and got by with little more than Amitryptiline for sleep problems. I had seen a few specialists who gave me various incorrect diagnoses. In the meantime I had gone enough to medical school and finished my residency and still really had no idea what the cause of my back pain was. I had stopped getting xrayed back in 2001 as they always came back normal and noone had ever referred me on for anything more as I was still very functional overall.

In January 2008 I reached over to pick up my son and that began the excruciating phase of my journey. I had this horrific back and buttock pain, could only sit for about 15-30 minutes, couldn't lift up objects anymore and had a hard time bending over. I went to massage and got worse. I then went to physio and got a lot worse and started to get some numbness in my left foot. At that point, I'd finally had enough and finally got an MRI - 18 years later.

I didn't necessarily expect to see a lot of damage as until the last 3 months I had normal strength and range of motion. I was still only 36 years old. However, the MRI showed severe dessication at L5/S1 with onset of facet osteoarthritis, moderate broad based disc bulge at L4/5 with an acute annular tear and very minor disc changes at L3/4. I was in shock when I heard this and cried uncontrollably for the next half hour. The amount of times I had given bad (and arguably much worse) news to patients didn't prepare me for what I saw on the report. I was too young, I had a 1.5 year old and a stay at home wife to support. I had oodles of medical school debt to deal with.

I went on to have an epidural which was helpful for awhile but I then started to have this severe ache on the left side. I went to one of my colleagues who was a spinal interventionalist and he tried a couple of medial bundle branch blocks to the facet joint and they provided about 50% pain relief on the left side. We decided to proceed in October 2008 and again I was better for awhile. However, in December 2008, one of my stroke patients fell on me and my back really acted up after that.

At this point I knew most of the remainder of my pain was the disc. I talked to another interventionalist colleague who was conducting one of the trials on intradiscal thermal biacculaplasty and he agreed to do the procedure on me after a discogram but not as part of the study he was doing. In March 2009 I went for the discogram with somewhat unusual results:

L5/S1: no pain even though radiographically the worst disc by far

L4/5: concordant pain to my deep buttock ache

L3/4: severe sharp pain that radiated into my lower back area and my thoracic paraspinals.

The followup CT did confirm significant annular tears at both L4/5 and L3/4.

I hunted down only guy in Western Canada who did multi-level disc replacements and got my appointment May 2009 (only a four week wait for the appointment and very likely influenced by one of my residency colleagues who worked in the same complex as Dr. Bouchard). When I saw Dr. Bouchard I wasn't sure if he would consider me for the procedure because of my facet arthritis and the fact that I have bit of an unusual S1 which is mildly lumbarized. However, he thought ADR at L5/S1 and L4/5 was the best choice for me given my age and the tendency for fusions to cause degeneration at the transitional level which was a concern given my L3/L4 discogram. He thought he could re-operate at L3/4 later if it became symptomatic but felt discograms have too many false-positives to rely upon for a disc that looked fairly healthy on MRI. He also thought he could do artificial facets in about 5 years if they were majorly symptomatic once the ADR was completed.

My surgery was booked but the waitlist was about a year. I finally got the word that the surgery was on February 2nd, 2010.

I remember going in for the surgery and finding it so odd to be in the patient's chair. Through my training I had experience as being the anesthetist and as the surgeon but not as the patient. They were all very kind to me. I remember the anesthetist getting ready to start putting me under and I asked him not to let me wake up during the surgery under paralysis and he promised to keep a close eye out for me. The last thing I remember before being put out was a sense of peace. I also remember thinking that I might die but not in a scary way - my suffering would finally be over.

I woke up post-op and had a morphine pump on (I had been on long-acting narcotics leading up to the operation) in one arm, nasal prongs for oxygen, catheter in my bladder. My back was sore, my stomach was sore but mostly my elbows were killing me - probably something funny to do with the positioning for the surgery. It took a herculean effort to get myself up to the sitting position as I refused help from the nursing staff. Over the next few days I came to loathe one nurse who was particularly aggressive with her spinal nerve assessments.

Finally I was released on post-op day 3.

My course after that went pretty smoothly. I was back to work for 2 visits after one week, part-time work at 2 weeks, regular work week at 4 weeks and full-duties at 6 weeks. I was off all medications by 4 weeks. I took my first flight in 2.5 years two months post-surgery. At 3 months my spine function was coming along good - I could lift my son, play some soccer in the back yard with him, sit on couches, sit through conferences.... My pain was about 80% diminished and I was so happy.

However, come mid-May that all changed again unfortunately. I was putting together a push mower my wife bought when I felt an ache in low lumbar area. The next day I started to feel deep central pain in the low lumbar area and sharp pain the thoracic paraspinals extending up to the lower aspect of my shoulder blades. I was worried that the discs may have become loose, started to subside or the L3-4 level had become symptomatic or perhaps those facets were acting up from distention from being bent over to put together the lawn mower.

Followup xrays have looked okay. Still not sure if L3/4 or the L4/5 or L5/S1 facets might be acting up. It has still been improving slowly over the last 4 weeks but not nearly as good as before the lawn mower problem. I will soon be starting some PT/pilates to see if some core strengthening will settle it down. This is what my surgeon is hoping for right now.

Alas, that takes us up to the present day. It is hard to stay positive after all of this but I will keep hoping for better things in the future even if it means another surgery(s). I've been through a lot and I suppose I'll get through this, too.

It is good to hear some of your guys' stories both good and bad as I know that I am far from alone.
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Pain since 1990, severe since 2008
MRI 03/08 showed L5/S1 severe dessication, L4/5 moderate disc bulge with annular tear. Some facet arthritis at L5/S1 and L4/5.
50% pain relief with RF neurotomy for left L4/5 and L5/S1 facets 07/08
Pain worsened 12/08
Discogram 03/09 with no pain at L5/S1, concordant pain at L4/5, severe but not usual pain at L3/4
ADR with aMav discs L4/5 and L5/S1 02/10
Recurrent pain 05/10
Current plan to try pilates
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