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The Big File All issues not easily categorized in the above forums are here. Comments on general health, diet, "getting comfortable," and more are here. |
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#31
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Count me in. The problem with class actions is that the attorneys get all the money. I'd love them to pay my Stenum bill!
Marilyn Three level ADR Stenum July'07 |
#32
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Erisa needs to go!If we are getting political about things, I'll go for a march on Washington (a crawl?) to bring attention to the fact that if you become permanently disabled and have purchased insurance through your employer, you are screwed. ERISA was meant to help the employee originally, but it (the only federal legislation on the books) was used for big corporations as a loophole to get out of paying . We Spineys are a target for a lot of things, because our problems are so expensive and problematic. I still think a crawl on Washington would be a good thing. The "million man that couldn't walk" march. We certainly deserve better. Even those of us who were well insured like me. All I have is social security, even though worker's compensation insurance was in place, and my long term disability was paid for twenty years! I have tapes given to me by my attorney that were spliced, altered, violating some law, reams and reams of tapes. Days on end, I would look out the window and the PI's cars were out there, waiting for me. Endlessly waiting to film and film, and that they did.
Then they send you to the creepy doctors who write ridiculous reports. Endless creepy doctors. Wouldn't it have been cheaper to actually just pay what was owed?I really think it would. Anybody else go through this BS? Broke and Disabled Spiney 3 Level ADR Stenum July '07 Still have pain. Quote:
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#33
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The wonderful thing about Democracies are that they are always being re-worked. Our power is only in numbers. If we choose to work toward a common goal, which would be insurance company reform. I should be getting a few payments here, but as things are, I'll never see them. And do I need money!!! OY! |
#34
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If Oprah is interested, she is pure gold. She is a real power broker in this country, and whether you like Michael Moore or not, he is too. Our individual complaints could become one voice, asking for justice, insurance reform, and the American Way!(Maybe it's time to get a cape on, haha) I call for a walk on Washington (crawl, wheel, lay down, whatever) It's our time!!I just spent eight years in bed being tortured by the insurance companies, then went to Stenum and paid out of pocket. I have to deal with Worker's Compensation as my insurer and they play all kind of tricks to get out of paying for health care of any kind. I legally cannot use my other insurances, so I go without health care, pay for it myself, or bargain with the doctors. Let's get off our sore behinds and do something about this!!
Marilyn three level ADR Stenum July'07 Still struggling Quote:
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#35
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__________________
*********************** 1/2006 DDD L5/S1 Prodisc St. Mary's 12/2006 not diagnosed properly pre-op and now have DDD L4/L5, facet calcification L5-S1/L4-L5, mild scoliosis and left knee pain. DDD: C3 through C6 |
#36
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This topic is getting a bit inflammatory and in danger of becoming divisive. Just to overshare, this is why I hinted earlier about not broaching the Moore issue earlier -- his work is provocative and usually elicits a very visceral/digital/opinionated response!
That being said, I like the quote it’s “better to light a candle than curse the darkness.” We as a community have started an informal, but very personal appeal that I would like to share with “the media.” Our message is not in danger of being quelled by the Oprah gatekeepers! I will work hard to get this story -- our story -- to other media outlets, especially our congressman in D.C. And I can now say that I was in their offices, speaking with them and their legislative assistants! It may not change the woefully dysfunctional insurance issue (with ALL new procedures, not just ADR), but we do have the chance to educate influencers in the media, government and the rest of society. That is, we will tell them our grueling stories of suffering while under the duress of unmanaged care. Now that I’ve come this far, I believe that anyone like Moore who can move people to act in a constructive path towards positive change is a very welcome force in our complex society. Thanks to all contributed their stories, I have about nine so far. Let’s get back to work.
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"Harrison" - info (at) adrsupport.org Fell on my ***winter 2003, Canceled fusion April 6 2004 Reborn June 25th, 2004, L5-S1 ADR Charite in Boston Founder & moderator of ADRSupport - 2004 Founder Arthroplasty Patient Foundation a 501(c)(3) - 2006 Creator & producer, Why Am I Still Sick? - 2012 Donate www.arthropatient.org/about/donate |
#37
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I cant believe we only have 9 stories submitted??? I sent private messages to over 100 people to ask them to read this post????
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Injured 9/01 Annular tears L4/5 & L5/S1 denied adr by insurance for 2 level charite as well as hybrid fusion at L5/S1 with Charite at L4/5. New ins paid for 2 level lumbar prodisc surgery on 4/7/08 (at age 39) with Dr. Westerlund, at Core Orthop |
#38
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I do not agree with your classification of Michael Moore as an idiot. Neither Oprah. We should keep in mind that we have an objective, and they are advocates. No matter what you think of them, they can help us get our message out there. We want medical care paid for, we want disability payments owed to us, we want justice when it comes to trials (including workers' compensation) . What do you guys and gals think of converging on Washington DC? We want action, let's go for it. I am going to challenge Oprah to have her cameras follow me through a "normal" day. I just got my physical therapy denied by Work Comp. I cant walk so I went to Costco and rode around in one of those little carts. A man had to help me with a giant cake that I got for Fathers' Day. Kind people are everywhere (everywhere but working for insurance companies). Spend a day with me and see how great it is to get injured at work. I was called a "Malingerer" despite diagnostics that proved otherwise. We who lose our lives (and lifestyles) to dangerous workplaces deserve respect( and money owed by insurance companies, health care, etc.) If we want our message out there, lets get our sorry behinds out there and tell people what its' like to have a serious health problem in this country. It sucks!!!
marilyn 3 level ADR Stenum July'07 Still hurting Quote:
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#39
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Marilyn, good points all around! LBP, thanks for all your hard work…wow…100 private messages is impressive. For what it’s worth, people in the marketing/PR world would be very happy with a 9% return…not to mention the financial world.
It’s not over yet. My original request was asking folks to submit letters to me until tomorrow, but I’ve figured out a few ways to make this easier for me, you and the media. More in the next 48 hours. Thanks all for expressing your concern. IT MATTERS!
__________________
"Harrison" - info (at) adrsupport.org Fell on my ***winter 2003, Canceled fusion April 6 2004 Reborn June 25th, 2004, L5-S1 ADR Charite in Boston Founder & moderator of ADRSupport - 2004 Founder Arthroplasty Patient Foundation a 501(c)(3) - 2006 Creator & producer, Why Am I Still Sick? - 2012 Donate www.arthropatient.org/about/donate |
#40
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Count me in! I'm not sure exactly what we are looking for, but I'll be happy to share one of the success stories. Harrison, please IM your private email address and I'll be happy to share my story. Please let me know what you are looking for. I am crazy passionate about ADR and what's I've been through and what's it done for me. My friends are tired of hearing about it! Give me a platform and I'll share. I just want a day or so to collect my thoughts... Let me know how to help!
Craig
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1995 L5 S1 laminectomy 2005 2 level herniation L3/L4 and L4/L5 5 epidruals 2006 discogram 2006 - diagnosed DDD - 2/19/07 2 level ADR- on the road to recovery!! |
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